Gregg Richards Foundation

We envision a world where the Gregg Richards Foundation has made significant strides in researching and understanding life threatening conditions, providing hope, and healing to those who need it most. Through our tireless efforts, we aim to bring about a future where individuals and families are no longer living in fear. Our vision is one of compassion, determination, and a relentless pursuit of a better tomorrow for all those affected.

Why were here

Gregg Richards Foundation is a 501c3 non-profit organization that was established to promote research and awareness about adult secondary HLH. The foundation was created in honor of Gregg Richards, who passed away in December 2022 after a courageous battle with Chronic Myelomonocytic Leukemia (CMML) and adult secondary Hemophagocytic Lymphohistiocytosis (HLH). Unfortunately, research on this rare condition is limited, and patients often have poor prognoses. Diagnosing this disease can be difficult is an understatement. Delays in identifying cancer as the cause of HLH occur frequently and are associated with worse outcomes. Patients often get steroids for HLH, which makes it harder to diagnose the malignancy and when it becomes apparent it is often more aggressive.

Cancer-associated HLH has the worst prognosis of the many HLH subgroups, with short term survival of about 70% and long-term survival as low as 18% (Lemberg et al., Haematologica, 2015)

The Gregg Richards Foundation holds the belief that every individual has a part to contribute towards building a better and healthier world. Whether you are a scientist, a doctor, a volunteer, or a donor, there is something you can do to make a difference in the lives of those affected by adult secondary HLH. Collaborating with each other can lead us to make remarkable progress in research and bring us closer to discovering a remedy. Every donation counts and every dollar goes towards funding crucial research. Join us in our fight against adult secondary HLH and help us honor the memory of Gregg Richards by making a difference in the lives of others.

Core Values

We value “P.E.O.P.L.E”

Perseverance

We believe in the power of determination to overcome challenges and obstacles. Our organization is committed to supporting individuals who are fighting against rare and life-threatening conditions like secondary HLH, like Gregg Richards, who demonstrated unwavering perseverance in his battle.

Empathy

At the Gregg Richards Foundation, we understand the importance of empathy in providing compassionate care and support to those in need. We strive to create a community that is sensitive and understanding toward the struggles faced by patients and their families.

Optimism

We recognize the impact of positivity in promoting healing and hope. Even when facing hardship, we keep a positive perspective and motivate others to do so as well. We believe that every situation can have a silver lining, and we work towards finding it.

Partnership

We have faith in the power of collaboration and partnership to achieve our mission. We work closely with medical professionals, patients, families, and organizations to build a network of support and share resources to fight against rare diseases.

Learning

We value continuous learning and believe in staying informed about the latest research and advancements in the field of rare diseases. We promote education and awareness to better equip individuals to advocate for their health and to facilitate informed decision-making.

Empowerment

Our commitment is to empower patients and their families to actively participate and take charge in their health and care while providing them with resources and support to help navigate the complex healthcare system and make informed decisions about their treatment options.