Gregg Richards Foundation
We envision a world where the Gregg Richards Foundation has made significant strides in researching and understanding life threatening conditions, providing hope, and healing to those who need it most. Through our tireless efforts, we aim to bring about a future where individuals and families are no longer living in fear. Our vision is one of compassion, determination, and a relentless pursuit of a better tomorrow for all those affected.
Our Board
Taylor Richards
862.485.4416
Taylor@greggrichardsfoundation.org
Valerie Crawford
973.202.6126
Valerie@greggrichardsfoundation.org
Clint Richards
862.485.4444
Clint@greggrichardsfoundation.org
About Us:
Gregg Richards Foundation is a 501c3 non-profit organization that was established to promote research and awareness about adult secondary HLH. The foundation was created in honor of Gregg Richards, who passed away in December 2022 after a courageous battle with Chronic Myelomonocytic Leukemia (CMML) and adult secondary Hemophagocytic Lymphohistiocytosis (HLH). Unfortunately, research on this rare condition is limited, and patients often have poor prognoses. Diagnosing this disease can be difficult, and the treatment may involve both significant expenses and invasive procedures. That’s why we are committed to supporting research that can help improve the outcomes for those affected. The bravery, perseverance, and resilience demonstrated by Gregg when faced with challenges serve as a source of motivation for everyone. We believe that his legacy should serve as a reminder that we can all make a difference in the world by coming together to fight against rare diseases and support those in need. We stay dedicated to continuing the fight against these events that affected Gregg and many others. Our mission is to promote research and provide resources for those who are affected and our goal is to raise awareness and improve the prognosis and quality of life for those who are diagnosed with it. Gregg Richards Foundation partners with other non-profit organizations that specialize in research and provide them with donations to support their critical work. Our team is made up of volunteers who donate their time and energy while sharing our passion for making a difference. We believe in transparency and accountability and are committed to providing our donors with regular updates on the impact of their contributions. We are proud of the work we have done so far, but we know that there is still much more to be done. The Gregg Richards Foundation holds the belief that every individual has a part to contribute towards building a better and healthier world. Whether you are a scientist, a volunteer, or a donor, there is something you can do to make a difference in the lives of those affected by adult secondary HLH. Collaborating with each other can lead us to make remarkable progress in research and bring us closer to discovering a remedy. Every donation counts and every dollar goes towards funding crucial research. Join us in our fight against adult secondary HLH and help us honor the memory of Gregg Richards by making a difference in the lives of others.
Gregg's Story
On February 2nd, 2022, Gregg Richards, an active, 65 year old male with no prior health issues, began an uphill battle against a rare form of leukemia known as Chronic Myelomonocytic Leukemia (CMML). There are only about 1,100 cases each year with the median diagnosis age range of 65–75 years, typically affecting men twice as often as women. Gregg at diagnosis was given a survival prognosis of 12 months. With a limited time to treat this condition, Gregg proclaimed on February 2nd, 2022, that he was going to fight. By mid-September 2022, he had received a bone marrow transplant. The doctors stressed the importance of surpassing the first 100 days with no problems. Day 65 his blood work was beginning to show some abnormalities. Gregg’s condition was rapidly decreasing with no sign of hope. Day 75 Gregg was in a coma like state where his family had learned he was suffering from secondary Hemophagocytic Lymphohistiocytosis (HLH). Secondary HLH is a life-threatening, rare condition clinically presenting as Systemic Inflammatory Response Syndrome (SIRS) with a dismal survival prognosis of only weeks. Due to the new developments in his condition, Gregg and his medical team found themselves in unchartered territory on treatments for this now perplexing situation. On December 24th, 2022, Gregg lost the fight he was never able to be truly prepared for.
Mission:
At the Gregg Richards Foundation, we strive to honor the legacy of Gregg by continuing his fight against rare and fatal conditions like adult secondary HLH. Our mission is to support research and provide donations to non-profit organizations that are dedicated to finding a cure. We believe that by supporting innovative research and raising awareness, we can make a meaningful impact on the lives of those affected. Join us in our mission to turn grief into action and make a difference in the fight.
